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Granddaughter needs prayer

Deacon

Well-Known Member
Site Supporter
This is a rather "clinical" post but there's lots of emotion in the prays to our mighty God.
Many thank for those who continue to pray for Kylie and her family.

~~~~~~~~~

Kylie has completed three rounds of chemotherapy and had scans performed yesterday that revealed the "metastases were no longer discernible" and the site of a possible new lesion that "could not be characterized".

Chemo is tough but she's holding up well.

IMG_9773.jpeg
She's unable to attend school and misses her friends, who occasionally visit.

Aside: I earlier posted that Kylie developed an internet friendship with a child that was battling a similar cancer. That girl passed away last month.

Rob
 

Earth Wind and Fire

Well-Known Member
Site Supporter
This is a rather "clinical" post but there's lots of emotion in the prays to our mighty God.
Many thank for those who continue to pray for Kylie and her family.

~~~~~~~~~

Kylie has completed three rounds of chemotherapy and had scans performed yesterday that revealed the "metastases were no longer discernible" and the site of a possible new lesion that "could not be characterized".

Chemo is tough but she's holding up well.

View attachment 10413
She's unable to attend school and misses her friends, who occasionally visit.

Aside: I earlier posted that Kylie developed an internet friendship with a child that was battling a similar cancer. That girl passed away last month.

Rob
Rob, thanks for the update…you folks are forever in our prayers
 

Scarlett O.

Moderator
Moderator
This is a rather "clinical" post but there's lots of emotion in the prays to our mighty God.
Many thank for those who continue to pray for Kylie and her family.

~~~~~~~~~

Kylie has completed three rounds of chemotherapy and had scans performed yesterday that revealed the "metastases were no longer discernible" and the site of a possible new lesion that "could not be characterized".

Chemo is tough but she's holding up well.

View attachment 10413
She's unable to attend school and misses her friends, who occasionally visit.

Aside: I earlier posted that Kylie developed an internet friendship with a child that was battling a similar cancer. That girl passed away last month.

Rob
I'm praying this morning.
 

Van

Well-Known Member
Site Supporter
I have been unaware of this prayer request. I know that just because cancer has been rendered "undiscernible" does not preclude recurrence.

I have a similar story, my great grandson had a large mass in his pelvic region, but they were able to reduce its size using medicine, and he spent months in hospital. Before his parents knew what was wrong, he was a grumpy child, never smiling and whining quite a bit. I was not too taken with him. My bad.

But in his case, God allowed our little loved one to survive. I will never forget, seeing him a few months after the treatment had concluded, sitting of the floor, playing with something, and he looked up and smiled at me.

May God bless
 

Deacon

Well-Known Member
Site Supporter
Recently the insurance company has said that Kylie's oral chemo medication is not FDA approved for children.

They said Her doctors will either need to change medications or have it given in a hospital setting.
It's a 5 day oral chemo regime after a dose of intravenous chemo.
The family and docs are fighting it - they don't want her to spend a week in the hospital each month.

So far Kylie has had 5 rounds of chemo and tolerated them as much as one can.
With the last one, last Friday, she also got a unit of blood.

The family is planning a trip to Disney sometime in May,
The doctors are trying to insure she is strong enough for travel.

Thanks for your prayers and concern!

Rob
 

Deacon

Well-Known Member
Site Supporter
The insurance companies backed off their threat to withhold the oral chemo. PTL, thanks for your prayers.

Kylie will have her next round of IV chemo at Children's Hospital in Pittsburg today, followed by 5 days of the oral chemo at home.

Rob

IMG_9641.jpeg
 

Earth Wind and Fire

Well-Known Member
Site Supporter
The insurance companies backed off their threat to withhold the oral chemo. PTL, thanks for your prayers.

Kylie will have her next round of IV chemo at Children's Hospital in Pittsburg today, followed by 5 days of the oral chemo at home.

Rob

View attachment 10691
GOOD NEWS!!! I prayed for her last night and will pray for her every day Rob… I also pray that these meds will work and not get her sick cause that totally sucks.

My wife is on new chemotherapy and nightly throwing up. We are going back to Sloan tomorrow for a brain MRI… let’s pray for her.
 

Deacon

Well-Known Member
Site Supporter
GOOD NEWS!!! I prayed for her last night and will pray for her every day Rob… I also pray that these meds will work and not get her sick cause that totally sucks.

My wife is on new chemotherapy and nightly throwing up. We are going back to Sloan tomorrow for a brain MRI… let’s pray for her.
Praying for your wife too. Yep, the week of chemo is rough.
I usually only share the happy pictures... some of the others are hard to see.
My wife is there this week to help out.

Rob
 
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