Which is, of course, not the point. The hospital has, effectively, kidnapped the child and has gone to court to prevent the parents from removing the child from that hospital and seeking a second opinion on the child's prospects under alternative treatment.
Mitochondrial DNA Depletion Syndrome is not always immediately fatal.
Patients diagnosed in the first year of life with Myopathic Mitochondrial DNA Depletion Syndrome have lived into adolescence.
Patients diagnosed in the first year of life with Encephalomyopathic Mitochondrial DNA Depletion Syndrome have lived into adulthood.
There is an old saying, "Where there is life there is hope." Were that my child I would remove him from that hospital and seek treatment elsewhere using whatever means necessary to accomplish that goal.
That is a fantastic rebuttle to an argument I never made.